Breast Cancer in women

Overview

In this section you can find out about women’s experiences of primary breast cancer by seeing and hearing people share their personal stories on film. Researchers travelled all around the UK to talk to 53 women in their own homes.

Find out what people said about issues such as diagnosis, family & friends and body image. We hope you find the information helpful and reassuring.

You may also be interested in our sections on breast screening, Ductal carcinoma in situ (DCIS) and Breast cancer in men.

This section does not cover experiences of secondary breast cancer which we hope to cover in a separate site in the future.

Jenni Murray introduces the Breast Cancer in Women site

Jenni Murray introduces the Breast Cancer in Women site

SHOW TEXT VERSION
PRINT TRANSCRIPT

I guess you’ve logged on to this website problem you have suspected breast cancer or you've just been told you have breast cancer. And it's a terrible, terrible shock. And it's frightening to think what's the treatment to be like? What are my chances of survive going to be? And on this website you will find lots of other women who've been through it and are prepared to talk about their own experience.

 

I've always believed that we have to be open about these things, and I can remember the days when my mother used to put her hand over her mouth and say, “she’s got the C word”. And now we talk about it, we talk about it openly. And that's so important because it means we can encourage each other to get tested to have our mammograms when we are supposed to have them, and to understand what we'll have to go through if we get it. And also, I think to put pressure on researchers and doctors to improve diagnosis, improve treatment, improve our life expectancy.

 

So even though I encourage people to go for their mammograms I failed to do so. I received the call, I looked at the piece of paper,  I couldn't go on that day, so I thought I’d better phone up and make an appointment for another time, put it on the pile I laughingly call my filing system and promptly forgot about it.  And then noticed a symptom, a retracted nipple that is a classic symptom. I was  standing in the shower and thought “Ah” and because I've done such a lot of work on the disease as a journalist, I knew exactly what that symptom meant.

 

As it was I had to have a mastectomy. I then had chemotherapy which I wouldn't really wish on my worst enemy, but it wasn't as bad as I thought it was going to be. Neither was the mastectomy. I had a bit of reconstruction done, just had an implant pushed in there,  and I now, on the whole,  just pretend it never happened. And I’m still here.

Breast cancer - site preview

Breast cancer - site preview

SHOW TEXT VERSION
PRINT TRANSCRIPT

Ingrid: I think one of the toughest things, actually, is telling people you’ve got cancer.

 

Gillian: And they’d ask me could -, they sort of used me if you like to take some photographs to show other women that, you know, having a lumpectomy really doesn't have to make a great deal of difference, which it didn't. The work they did on that was amazing, I think I had a tiny little line and virtually no indent.  

 

Janet: I had an assortment of wigs, which was which was great. It was it was nice. And I felt very much more confident knowing that I didn't have to go out looking bald, because that was another thing. It was interesting because when I was told I’d got breast cancer, the two things that really worried me most of all were a) being disfigured, losing a breast, and b) losing my hair. I know that sounds vain but that was all part of me being a woman.

 

Penny: And I think when I look back at the time, there was no pretty underwear, there was no lovely strappy tops, things weren’t pocketed, and you had to really think about the cut of your clothes.

 

Tess: So I think, you know, having thought that I’d just have the chemo, but then I found I had to have another year of treatment. But, you know, again, it -,  nothing felt bad that was going to help. And I was I was happy to, sort of, do anything.

This section is from research by The University of Oxford

Nuffield Department of Primary Care Health Sciences logo

 

Supported by:
Citrina Foundation
Macmillan Cancer Support
NHS Direct Online

Publication date: December 2001.
Last updated: November 2024.
Last reviewed: November 2024.

Copyright © 2024 University of Oxford. All rights reserved.