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Clinical trials: Parents’ experiences

  • Overview
  • Clinical trials in young people
    • Why do we have clinical trials in children and young people?
    • Different types of trials
    • Information parents receive when invited to enrol their child
  • Making the decision about enrolling your child
    • Making the decision about enrolling your child: parental consent
    • Involving children in decisions: child assent
    • Reasons for wanting your child to take part: child's health
    • Reasons for wanting your child to take part: helping medical science and others
    • Deciding not to enrol your child and when your child may not be eligible
  • Being in a trial
    • Understanding allocation (randomisation) to a treatment comparison group
    • What is involved in a trial: appointments and monitoring
    • What is involved in a trial: time commitment and costs
    • Side effects in clinical trials
    • When the trial ends: feelings, future care and personal feedback
    • When the trial ends: feedback of trial results
    • Withdrawing your child from a trial
  • Other issues
    • Parents messages to health professionals
    • Messages to Parents
    • Views on future trials
    • Other types of medical research
  • People's Profiles
    • Decided not to enrol their child
    • When your child is not eligible to take part
    • Vaccine trials
    • Long term health conditions
    • Growth hormone trials
    • Neonatal trials
    • Screening trials
    • Health Professional
  • Resources and Information
  • Credits

Clinical trials: Parents’ experiences

Resources and Information

The Department of Health – consent guides
Consent – what you have a right to expect:  A guide for children and young people
Consent – what you have a right to expect:  A guide for parents
 
Medical research involving children 
mrc.ac.uk
A booklet by the medical research council
 
Download our Medical Research Resources.

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