Kidney health
Lifestyle Changes
Diet
Some people we spoke to said that their diet was already healthy, so they hadn’t needed to make any changes. Others said that they had changed their diet, for example by reducing the amount of salt, fat or sugar they ate.
Jackie couldn’t recall anyone ever advising her to reduce her salt intake because of her kidney problem, but she did it herself as part of efforts to maintain a healthy lifestyle.
Jackie couldn’t recall anyone ever advising her to reduce her salt intake because of her kidney problem, but she did it herself as part of efforts to maintain a healthy lifestyle.
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Is that something you’ve discussed with any of your doctors over the years or have you just done it all off your own bat?
Surprisingly I haven’t discussed it with the doctor. It’s, even, when I think back, even though it was well known about having a low salt diet if you have a kidney problem, it was never actually mentioned to me. It was just something I did myself because I was aware of it. But I don’t recall anyone ever saying to me, “You should have…”, you know, “Restrict your salt intake”, which is quite interesting, because, whether someone just assumed that someone had said this at some point [laughs], you know, which, you know, is I guess, you know, could have been the case and they thought, ‘Oh well, she’, you know, ‘Someone will have said this’, but actually nobody did.
So has any health professional given you any advice about diet ever?
No. I don’t think so. Recently, the GP at, I see, it, but it was a kind of general, you know, about taking care of yourself generally. I think it was a, it wasn’t an in depth. It was just a, you know, low salt, healthy weight, you know, but not specifically, no.
Royston Y cut down on cheese after being advised by a nurse that his cholesterol level was raised. He was also given written information about healthy eating and is careful to stick to this.
Royston Y cut down on cheese after being advised by a nurse that his cholesterol level was raised. He was also given written information about healthy eating and is careful to stick to this.
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Not recently, no.
But a while ago?
Yes, yes, I was given, before I moved here actually I was given a diet, you know, a diet sheet by a nurse who was about twice the size of me. But, [laugh] which rather amused me. But still. And I have tried to be careful what I eat.
Yes.
All right, I might go over the top occasionally, but basically I do try to be careful.
So what sorts of things do you eat?
Well, I mean I’m very partial to fish and white meat. I know I said I had sausages today but that, that’s, I don’t have that every day by any means. And usually with vegetables, and w-, sometimes fruit after, afterwards.
Sounds healthy enough to me.
Yes, yes, yes.
Yes. Do you cook for yourself?
Yes.
Good.
Well, unless I’m going out somewhere. But even if I go out, generally speaking I’ll, I’m usually quite careful what I choose, nothing too rich. And I don’t normally have puddings.
Oh, that’s very restrained of you.
Yes, as I say, I don’t normally [laugh].
[Laugh] You have to treat yourself sometimes.
Well, oh, yes, yes, just occasionally, yes.
Yes, yes. So why was this nurse worrying about your diet?
I can’t actually remember. I suppose I might have had a blood test and it might have been a bit high or something like, oh, the cholesterol, that’s what it was. The cholesterol was a bit high and I should, I shouldn’t eat so much cheese and this, that and the other.
So did you change your diet?
Yes, I did.
Oh.
I did.
Well done.
[mhm]
You’re a compliant sort of a chap?
Yes. I still like a bit of cheese.
Yes.
But, yes, no, but again, not to the level that I was. I was eating cheese every day.
Oh.
Which I don’t now.
Right. And did you lose any weight as a result?
Yes, a bit, yes.
[mhm] Good, well done.
Yes, yes.
Anne recalls a GP suggesting she should not eat too much fruit and vegetables because of her colitis. She describes her daily diet, which is also limited by diabetes.
Anne recalls a GP suggesting she should not eat too much fruit and vegetables because of her colitis. She describes her daily diet, which is also limited by diabetes.
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It is a bit restricted. But I’m fortunate in that I like what I like.
I have Cheerio’s each morning and I think ‘well, they’re probably a good thing, whole wheat cereals and so on’. And I tend not to have much round about lunch time, might have a couple of digestives to keep the carbohydrates going. And I’m fortunate that, although I don’t cook, there’s a family member who will cook most days. So I have things like chicken, rice; I like ham. I tend to not have many vegetables. I understand why five a day is recommended for most people. But I remember the GP a long time ago, saying, “Yes, I realise that a lot of vegetables is not going to be a good thing for somebody with colitis.” So I perhaps have a lot less fruit and vegetables than most people. And supper time, I usually have something like, sort of, cheese and biscuits. And I tend to have quite small quantities and to eat quite slowly because that’s the way I eat anyway.
Some people had been advised or had read that they should keep their fluid intake up. While drinking a healthy amount of fluid will prevent dehydration, it is not known whether drinking a larger volume of fluid than normal can slow down the progression of kidney disease.
A GP considered David’s diet to be healthy but advised him to keep his fluid intake up. This was easy for David as he frequently went to the tap for a cup of water anyway.
A GP considered David’s diet to be healthy but advised him to keep his fluid intake up. This was easy for David as he frequently went to the tap for a cup of water anyway.
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I was advised… I didn’t ask questions, I was advised to keep my liquid intake up with them and in particular water.
So did you make any changes or ?
Well I couldn’t make many changes because I've always been a big drinker of water. I was always up to my- what they recommend your daily intake of liquid was and I was forever going to the tap and a mugful of water, it's never been a problem drinking water.
Did your GP give you any other advice on food or was it just drinking water?
Just the drinking of the water because she'd asked me what my diet was and she was happy with my diet.
And what is your diet?
Well much and varied. I like all food – plenty of veg. Even now I'm by myself I'm cooking… cooking meat, potato and three veg every day for myself.
And sugar is, hardly ever use sugar at all. If I do a bit of cooking – baking which I do sometimes – I use sugar then but a bag of sugar lasts me for months and months and months.
Betty likes cooking for herself but doesn’t do it much these days because of pain from a back problem when she stands for any length of time.
Betty likes cooking for herself but doesn’t do it much these days because of pain from a back problem when she stands for any length of time.
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Yes and she weighed me and I eat, as I say, very little and I can’t cut down on what I eat because I really choose what I eat, you know, and I always have porridge in the morning. I must admit I have a little brown sugar on it, I mean I know that. I have, try and, midday I have, I used to have it in the evening but it’s, I couldn’t cope with it in the evening, after a while, so I have it at lunchtime, you know, and I always have something. A lot of chicken. I have fish. I like those packs, do you know, do you know the ones? They’ve got all the chopped up green stuff and everything in.
You know, I have that. I like that with perhaps some chicken or something like that. If I make, I make a soup, I do it, I make my own soup, like, you know, I just shove everything in. I do like cooking and everything, you know, but, as I say, with my back, I have to have to keep sitting down, so I don’t do much these days.
When Gordon attended rehabilitation sessions after a heart operation, as well as doing exercises he was advised on how to eat healthily to protect his heart.
When Gordon attended rehabilitation sessions after a heart operation, as well as doing exercises he was advised on how to eat healthily to protect his heart.
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Yeah
Can you remember what kind of things you’ve been taught in the classes, what was helpful to you, what do you remember? …Especially around diet?
Well it's all …oh God that’s a job to think about that. I mean they told us we've got to eat; you need fish, oily fish at least three times a week. …Brown bread, not so much white but I'm not a keen lover of brown bread. …Cereals …do eat lot of cereals and all that so… and there's a lot of things that I can't remember now, they were to, they were pretty good with us …you know?
Well you don’t bring… you know you can't remember them all. I look after myself and I mean I'm the right weight. So I'm happy.
Some of the people we spoke to wanted to lose weight but found it very difficult. Donald said he had failed to lose weight despite changing his diet because of his diabetes. Flo said she was too old to bother at age 70.
A nurse told Betty that she is overweight, but as she is relatively inactive because of mobility problems and already eats healthy food in small quantities, Betty doesn’t know what else she can do.
A nurse told Betty that she is overweight, but as she is relatively inactive because of mobility problems and already eats healthy food in small quantities, Betty doesn’t know what else she can do.
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Yeah.
…when the doctor said to you recently that you were overweight…
Yes.
Was she suggesting…
No, it wasn’t a doctor. It was the nurse.
Oh was it?
She said, “You you’re getting quite obese.”
She used that word?
Yes.
Really?
Yes and I said to her, “I’m very sorry but it isn’t what I eat.” I said, “It’s because I can’t walk or do anything.” I’ve always been so active, you see, and I’ve always walked and walked and walked. Well, of course, stopping that and, as I say, I just can’t cut down any more on my food. Sometimes I, as I say, I’ll have some lunch and then afterwards I won’t , sometimes I don’t even have anything else. I might have just a , sometimes I have a small sandwich about tea time but sometimes I just have a sort of small slice of cake, and that’s it. That that’s what I eat, you know…
…it’s well, my carer, when, you know, when she comes and, she knows what I eat, you know, so it’s no good me trying to bluff because, and say I don’t eat this and that and the other, she knows exactly what I eat and she said to me, “Betty, you can’t cut you can’t cut down anymore.” So….
Was the practice nurse suggesting that you should change your diet in some way?
No, she didn’t say. She just said I was overweight and getting on towards being obese.
So, but she wasn’t suggesting you should do anything?
No, no. Well, I, but the food I eat is the healthy food.
Chicken, you see. Make my, sometimes I have soup. I buy a tin of soup for an emergency. I have a couple of tins in the cupboard. But usually, I make my own soup and, as I say, it’s a lot of, I like green stuff and I like, well, I do have potatoes, I must admit, I do have potatoes, but I don’t know what else I, you know, I can do.
Donald has diabetes and receives dietary advice from a dietitian but has not lost weight. He often eats out because he lives alone and finds it tempting to snack to keep his blood sugar level up.
Donald has diabetes and receives dietary advice from a dietitian but has not lost weight. He often eats out because he lives alone and finds it tempting to snack to keep his blood sugar level up.
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Well no it's been suggested by a dietitian, I've seen a dietitian from time to time – gives me a sheet of what I should drink, what I should eat and what I shouldn't eat, and I largely try and stick to, but ‘cause if you live on your own it's not, you haven't got anyone else sort of pressuring you, have you, so you tend to go for fast food anyway. It's easiest to go out and have something to eat rather than, you know, stay in. Well I like to get out in the evening, I'm not working, I like to get out the evening anyway rather than staying at home watching some stupid soap opera [laughs]. So , you know, so I think your lifestyle a little bit, when you're on your own you just tend to be a little bit different from someone who has a partner or married or have children for instance.
So when you first got to see a dietitian was that something the GP organised or…?
Yeah it was organised through the GP, yeah. I've been seeing a dietitian on and off for several years. In fact I saw one, first time I saw a dietitian was back in 1989, so that’s going back some time. So I've seen dietitians over that time, different ones.
And do you think you've benefitted from the changes…?
Well I think it helps, I mean I haven't generally lost a lot of weight but I think it helps in education – it gives you an idea of what to… you know, it gives you a good indication of what level of portion sizes and everything else, that's always very important when it comes to eating; it’s not just how much you eat, it's… well it's not so much how often you eat, it's portion sizes.
Because with diabetic… with being a diabetic you tend to possibly eat a bit more because the fact the high… the possibility of going hypo, there is a tendency to snack a bit more, you know, just boost up the sugar level, there is that tendency.
So, I'm sorry, did you say you had or you hadn't lost weight?
No I haven't lost weight no, no – if anything I've put it on. But, you know, it varies, sometimes it goes up then sometimes it goes down, you know, so it's round about the sort of… it's not the highest... At the moment I'm about two stone less than I… the highest I've been but several stone more than I used to be when I was about fifteen years younger, you know, so. But of course your metabolism slows down the older you get as well so. And there’s a lot of people I know I haven't seen for years, suddenly I felt, “Good lord”, I hardly recognise the person who’s put a little weight on around the face and that sort of thing, because obviously the older you get you slow down, don't you don't burn as many calories. Mm.
Margaret had been given vouchers from the NHS towards slimming classes and said she now felt healthier as a result of losing weight.
Margaret had been given vouchers from the NHS towards slimming classes and said she now felt healthier as a result of losing weight.
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What would you say, what is it down to that you managed to do that because I have to be honest, I find it quite amazing that you managed to lose all this weight.
Probably because she said that the blood pressure had gone up because I thought, you know, although I say, you know, if your time is up, your time is up. I actually would like to sort of live long enough to see the grandchildren and, of course, I do worry about my son that is disabled but so I want to carry on as long as I can. So I was quite happy to sort of go on the diet and, well, it’s not really a diet. It’s more a way, a different way of eating and I’m never hungry. I’m going to have a massive great, I’m even having chips for my tea but they’re Slimming World chips. So they’re done with one spray of oil, you know?
That approach really works for you, the Slimming World approach.
Yeah, I like it. You get loads of stuff you can do.
Have you been dieting at other times of your life?
In two thousand and nine, I did lose two and a half stone in six months and did I try…? I did actually try, years and years ago, but I didn’t get on very well. I don’t really know what, I can’t remember what that one was. We used to have to sit there doing all these silly exercises as well. So, no it wasn’t for me.
Some people we spoke to considered themselves reasonably fit or said they were on their feet all day so didn’t feel they needed to increase their levels of physical activity. Health or mobility problems limited other people’s ability to be active, but most tried to do some level of activity. Walking was popular although Ian said his Chronic Obstructive Pulmonary Disease limited the distance he could walk on cold days. Other forms of activity included gym exercises, gardening, golf, cycling and swimming.
Flo has multiple health problems and finds that the exercise advice offered to her by health professionals is often unrealistic for her circumstances.
Flo has multiple health problems and finds that the exercise advice offered to her by health professionals is often unrealistic for her circumstances.
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When you go for your yearly… MOT the nurse says to you "Your cholesterol level's high or it's low." If it's high she'll discuss, you know, are you taking… do you eat…(whispers) cheese is my downfall.
And it's, you know, sort of, "Less of the cheese if you don’t mind or less of this so you know, sort of take that steady, you're not too bad but you're just creeping up again." When it comes to exercise she says to me, "Do you do twenty five minutes brisk walking every day?" Now, I can't even walk to the bottom of the street. How on earth do they think I'm going to do a brisk walk of twenty five minutes every day? So then I got told, "Well no well we appreciate that; how about …walk nice and steady," and I'm using a walking stick mind, "Nice and steady, don t worry about it. Walk until you're tired then turn round and walk back." Now if you walk that way until you're tired there's no point in trying to turn round and walk back again because you're too tired!
So when you explain that they say, "Yes alright then; now how many times do you go up and down stairs in the day?" That’s enough [laughs]. Because all of a sudden they can see that it's silly, there's no point.
Barbara cannot walk as much as she used to but does walk every day when taking her grandchildren to school and back or to the shops.
Barbara cannot walk as much as she used to but does walk every day when taking her grandchildren to school and back or to the shops.
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No because I do walk quite a bit. I mean I take my grandchildren to school and then go and fetch them and I do that three times a day or I'll walk to the shops and walk, you know, walk back and everything else like you know? so…
So you feel you're getting quite a good bit of exercise?
Well I don't walk… I'm saying I walk but I do not walk so much as I used to. I mean when they were small I used to walk from here right down to [name] Road and I used to walk from here right down to [city area]. Down by [city area] and walk all the way back home. I mean I don't do that now, that is a bit too much for me now like you know? But I do try and walk quite a bit.
Following an operation on her spine, Jackie Z has had exercise on prescription from her GP, which she gets at her local gym, in addition to regular physiotherapy at hospital.
Following an operation on her spine, Jackie Z has had exercise on prescription from her GP, which she gets at her local gym, in addition to regular physiotherapy at hospital.
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Yeah I've got a programme of physiotherapy exercises from [small local hospital], physiotherapy department, and I also go to the local authority gym in [suburb] here on the Exercise… Exercise on Prescription it's called.
Which is great. I asked for that because I'd heard about it and the GP said, "Ooh yes we can put you on to that," and that’s been great. Because you go to the local gym; all your medical details that the gym needs to know are there on the computer for them and there is a person there who is actually employed by the NHS to look after all the people referred and make sure you don’t do anything to damage whatever's wrong with you.
Which is great, it's very reassuring and I was building up beautifully before I fell and broke my hip [pulls a face].
Among the people we spoke to were those who had never smoked, those who had smoked in the past and successfully quit or were trying to quit (either with professional help or going it alone), those who had cut down or were trying to do so, as well as current smokers.
Russell gave up smoking 22 years ago after finding the smell of a friend’s cigarette revolting when he was recovering from the flu.
Russell gave up smoking 22 years ago after finding the smell of a friend’s cigarette revolting when he was recovering from the flu.
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I don’t smoke. I haven’t smoked for… I haven’t smoked cigarettes for about twenty two years and I gave up just like that [shrugs] and that was it.
The only time that I ever felt ill was when I had flu at Christmas and I gave up smoking. And I was… I came home on the Christmas… I came home and I was absolutely shot for about a week before Christmas and I went through this week and the flu was terrible. I could not even drink a cup of tea could I? And I… got through the flu and decided to go out to a game of skittles and I got there and my friend said, "Oh I'll come and mark up on the board with you," and he put his cigarette in a wet ashtray; …he put his cigarette down in a wet ashtray and this cigarette burnt out in a wet ashtray and it burnt out right the way up to me. And the smoke that came out of it was absolutely revolting smell.
And I thought, 'Blow me I've been pushing all that rubbish down my neck all these years I ‘ve been smoking?'
And that’s when you gave up?
And I gave up smoking that day.
Liban stopped smoking about 12 years ago immediately after learning that he had diabetes.
Liban stopped smoking about 12 years ago immediately after learning that he had diabetes.
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When did you stop?
When did I stop? [looks to ceiling]…about 12 years, I think so.
Yeah. Was it hard to give up?
Just [makes hand throw over shoulder gesture] I stop.
Just one day?
Yeah when I know anyway I have diabetes.
Mm okay
It’s not so good. Diabetes and smoking is not so good together. I stop before something is happening. Otherwise, something is happening - when something is happening it’s too late.
Yeah
Because it stops all the blood, this one. [points to his fingers?] And then it was late, you see?. So I stop it.
The people we spoke to drank different amounts. Liban drank no alcohol at all because of religious reasons, Margaret didn’t drink because she didn’t enjoy it, Peter and Bernard had given it up for health reasons. Others drank alcohol only occasionally, or regularly but within recommended limits (current guidance is no more than 14 units a week for both men and women - NHS Choices 2016). Some drank more than this and were worried about the effects on their health.
Eric said he had reduced his consumption since retiring from work; Simon cut down because too much alcohol can interfere with the warfarin he now takes for his heart condition. Laura believes she drinks too much but is surprised that her GP has not advised her to cut down because of her kidney condition.
John X sought help with reducing his alcohol consumption after learning he had a liver problem. He rarely drinks nowadays.
John X sought help with reducing his alcohol consumption after learning he had a liver problem. He rarely drinks nowadays.
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Did the GP offer you any help with that? Did you discuss the drinking with your GP?
I did yes. I did go somewhere to see about the drinking, yeah. And that helped a little bit, one of these places you know that you go and…you know, talk to people and just…
Was that in the GP practice or was it like a specialist alcohol services?
There was another alcohol service; I can't remember the name of them now. But I think it was suggested that I go there… which I did, but you know. But then I decided to do it myself anyway so, you know to cut down, not…you know… not sort of drink every day and, you know, cut the amount down with a reasonable amount. And… but I don’t go out to the pub at all now so I might just have a couple of cans in or something, you know so. Very rare I go to the pub, and if I do I just have a soft drink and have something to eat usually and that’s all I do now.
Was it hard making those changes?
Not really. I think it was because of the problem at the time.
Mm… going through the divorce?
Yeah and through that and a few things back through life you know and I decided I… I hit the drink a bit but I just don’t see the need for it now and I… you know.
Last reviewed August 2017.
Last updated August 2017.
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