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Motor Neurone Disease (MND)

  • Overview
  • Diagnosis
    • First symptoms of MND
    • Path to diagnosis of MND
    • Immediate reactions to diagnosis
    • Possible causes of MND (including inherited forms of MND)
    • Telling others
  • Treatment/ interventions
    • Medication, trials and research for MND
    • Tube feeding (PEGs, RIGs, PIGs) and ventilation
    • Complementary therapies and alternative treatments for MND
    • Physical therapy and exercise for MND
  • Information and support
    • Information needs
    • Support groups and meeting others with MND
  • Work/ career and money
    • Work and career
    • Finances and benefits
  • Living with MND
    • Mobility, arm and leg weakness in MND
    • Aids, equipment and adaptations for MND
    • Personal care and care support for MND
    • Speech and communication with MND
    • Eating, swallowing and breathing with MND
    • Tiredness, pain and discomfort with MND
    • Thinking and behaviour with MND
    • Emotional lability, depression and low mood with MND
    • Relationships and sex with MND
    • Leisure, holidays and travel with MND
    • Impact of MND on family carers
  • Feelings about life and the future
    • Philosophy, attitude to life and messages to others with MND
    • Hospices, respite for MND and thoughts about future care
    • Thoughts about death, dying and bereavement
  • Health and social care professionals
    • Coordination of care for MND
    • Messages for professionals from people with MND
  • People's Profiles
    • ALS- amyotrophic lateral sclerosis/MND aged 20-49
    • ALS- amyotrophic lateral sclerosis/MND aged 50-64
    • ALS- amyotrophic lateral sclerosis/MND aged 65+
    • Bulbar onset
    • Rarer forms - PMA (progressive muscular atrophy)
    • Rarer forms - PLS (primary lateral sclerosis)
    • Rarer forms - familial/inherited
    • Carers
  • Resources and Information
  • Credits

Motor Neurone Disease (MND)

Profiles - ALS- amyotrophic lateral sclerosis/MND aged 20-49

Kim

Kim is an occupational therapist, married with 2 children, aged 12 and 10. Ethnic background/nationality: White British.

Martin

Martin is an unemployed former building worker, single. Ethnic background/nationality: White British.

Michael

Michael is a business manager (motor sales), married with 2 children, aged 11 and 9. Ethnic background/nationality: White British.

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