Psoriasis (young people)
Overview
Psoriasis in young people - site preview
Psoriasis in young people - site preview
Megan: I remember sitting there once the nurse had told my Mum and I just sat there and like loads of questions went through my head, like I didn't know what to think because a seven year old doesn't expect to sit in the hospital and be told that she's got a skin condition, which she could have for the rest of her life. And I just kind of sat there like, this is going to entail on my whole life, I could have it for the rest of it, and like people are going to think it's ugly and horrible, like I'm going to lose so many people because of it.
Russell: So I feel like I'm best equipped to cope with it right now, because I'm kind of at a peak in terms of adaptability. So I can just take it on in the same way that kind of you'd add a meeting to your calendar or something, or you decide that you want to start playing a different sport this year and you add it on. I've got to sort of put some cream on at night, and you just add it on in that sense. So it's not something that's come, it's not something out of the blue, it's something that I can sort of tag on to a, a lot of other things. So it just kind of becomes part of of life.
Hannah: I feel like it's a really strange journey. It's been a really strange journey for me because when it's at its worst, you always think I just want it to get even a slight bit better and I'll be happy. And then when it does you’re not, and you're just sort of never really satisfied because you're always looking at other people whose skin. For some reason, you're always comparing yourself to people whose skin seems to be seemingly perfect. And with me because of my skin tone being quite tanned, when my psoriasis went I was left with lots of hyperpigmentation. So I found myself kind of even being frustrated at that.
Ella: I think one of the things that I've always had is the doctors going, "Right, here's your creams and you have to put them on twice a day, every day, you have to use these certain shampoos, these certain soaps and everything like that, and you have to use them." And I think while obviously they know exactly what they're talking about, it can be difficult to- to do exactly what they say, like I probably should be putting my creams on twice a day, every day, but I only put it on once a day because I literally don’t have the time in the morning to put them on in the morning, and if I did put them on in the morning then my skin would not feel very nice – like it would feel greasy
Louis: So I think for anyone who's dealing-, who's coming into contact with someone who's got a skin condition, whether they're a GP or whether they're a friend, whether they're a stranger - try to think that this person isn't just a rash or a boil or a whatever. They are a person who happens to have this quite inconvenient problem with their skin. And they'd much rather you treated them as the person they are than just a skin condition.
In this section, you can find out about the experience of having psoriasis by seeing and hearing young people share their personal stories on film. Our researchers talked to 18 young people in their own homes. Find out what people said about issues such as symptoms, treatments and impact on school, university and social life. We hope you find the information helpful and reassuring.
The people we talked to were given the choice about the format their interview appears on the website. Some people chose for their interview clips to be featured as audio or text only, rather than video.
You may also be interested in our sections on eczema, acne and alopecia.
This section is from research by the University of Oxford.

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This is a summary of independent research funded by the National Institute for Health and Care Research (NIHR) under its Research for Patient Benefit Programme (Grant Reference Number PB-PG-0213-30006). The views expressed are those of the authors, and not necessarily those of the NHS, the NIHR or the Department of Health.
Publication date: March 2017
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