Stroke
Messages to others about stroke
We asked the people we interviewed what advice they would give to other people who have had a stroke. Here is what they said.
Your recovery
Many people talked about the importance of determination, perseverance, and patience in both physical and mental aspects of recovery. On the physical side, keeping up with physiotherapy and doing exercises on one's own were emphasised. At the same time, it was suggested that it is important to recognise personal limitations by balancing activity and exercise with rest. On the mental side, positive thinking, and goal setting were thought be to be helpful during the recovery process.
It's up to you to fight it and to help yourself.
It's up to you to fight it and to help yourself.
You have to be motivated to recover and find ways to occupy your life.
You have to be motivated to recover and find ways to occupy your life.
The' difficult' sorry, it's diff, the'
It comes from yourself?
Yes.
So'
Yes.
You have to be motivated'
Yes.
'to continue?
Yes.
Yeah. And what does that mean to, in terms of'
Anything.
'doing things?
Anything.
Mmm.
Good'
Driving, painting?
Drive. Yes.
You have to find other things'
Yes.
'to occupy your life'
Yeah. Yeah.
'and give you purpose?
Yes.
Try to do as much as you can for yourself and don't rely on other people or you'll lose your independence.
Try to do as much as you can for yourself and don't rely on other people or you'll lose your independence.
Well, to try and do as much for yourself as you can and not rely on other people all the time and I think a lot of people just, you know... I think they just sit back and let other people help them too much and I think that way, you lose your independence. Maybe I'm wrong but it's the way I think, I feel about it.
It's important to have something to look forward to and to set yourself goals to work towards, no matter how slowly.
It's important to have something to look forward to and to set yourself goals to work towards, no matter how slowly.
Yes. It is, I think it is important to have something to look forward to because when we come out of hospital, rehab, whatever, you're in this little world of your own. You've got to get yourself back into the real world and so you've got to set yourself goals and projects and things that happen out there that you haven't been part of. You've been, you've been away from all that for a long time, so you've got to get yourself back into that and the only way to do it, I think, is to set yourself goals. Maybe little things to start with, you know, small things and then work up to bigger things, even if it's only perhaps, I don't know, just something that you can't do in the house, maybe like hovering or whatever, that you haven't been able to do. Set yourself a goal that you can actually do the hovering downstairs and upstairs all in the same day, things like that. Start off with little simple things and then work up to bigger things, you know. Maybe something that you want to do in the garden anything at all that seems complicated to you and that you think you can't do. Set yourself a goal and work towards that, even if it's very, very slowly. I think important to, to gradually work towards it and when you've done it, you'll feel very proud of yourself and you'll be able to set yourself another goal. Maybe a bigger one the next time but you'll go on and that pushes you forward and it also, when it happens after, just after stroke, I think it gets you back into the real world and that's very important. So I think goals, yes, I would say. Really, really important.
Take the tablets and do what the health professionals advise because they wouldn't be telling you if it wasn't worth knowing.
Take the tablets and do what the health professionals advise because they wouldn't be telling you if it wasn't worth knowing.
Well take the tablets you're told to take and do as you're told. That's all I can say is that, you know, they wouldn't be telling you if it wasn't worth telling you, would they?
Being realistic
The importance of setting reasonable goals and making the best of the situation was emphasised.
Gavin talks about fighting to recover versus acceptance.
Gavin talks about fighting to recover versus acceptance.
Individuals suggested that is helpful to get in touch with other people who have had a stroke such as through a support group. Individuals felt that it was important and helpful to communicate with other people who have had the same problem. Being proactive by seeking help and care in the community was encouraged.
Get in touch with the Stroke Association for good information. It's good to meet other people who have had a stroke but avoid people who make you feel worse.
Get in touch with the Stroke Association for good information. It's good to meet other people who have had a stroke but avoid people who make you feel worse.
I would say get in touch with the Stroke Association and Different Stroke because they have lots of wonderful information and read as much as you can and don't listen to what an awful lot of people say even for example nurses in the hospital because if you're not in a stroke unit, they won't have been, they won't have had, oh I can't remember the word. They won't have learned to look after stroke patients and a lot of their information won't be any better than what you've got. Try and find a stroke group. It can be useful. I'm, I'm sure it's useful to talk to other people who've had the same experience and Different Strokes, for instance, they do stroke groups that are exercise classes as well and we had somebody wonderful doing the exercise class but unfortunately she hurt it back and it folded up. If you can't find another stroke group near that you can get to and there are quite a lot around, hmmm, oh yes, I know what I was going to say. Try and if you don't already know someone who's disabled in some other way, try and get to know other disabled people because you'll discover you've got an awful lot in common, even if they haven't had a stroke and it's much, it's much easier then for people who've, who have maybe had quite a few serious things wrong with them and you can laugh about what you've got. You can laugh in all sorts of ways, whether it's where you're going to be buried [laughter] or all kinds of things and avoid like the plague [laughter] people who make you feel worse. That is so important and I think you've got to keep that in the back of your mind because, unfortunately, they keep popping up all over the place [laughter], even where you're not expecting to find them. You think you're in a group, like for instance in a church, where everybody's going to be very sympathetic and helpful and knowledgeable and, and it's not like that and it can really bring you down if you're with people that make you feel worse and you know, it's not legal to bash them over the head [laughter].
Approach to life
Many individuals talked about the importance of self-efficacy (believing in yourself), accepting the condition but also being determined to improve and get stronger. Having a positive outlook as much as possible was encouraged.
Live life and smile a lot and be happy.
Live life and smile a lot and be happy.
Developing new interests and keeping in contact with friends was encouraged.
Never give up. Keep in contact with friends and others, develop new interests in new areas.
Never give up. Keep in contact with friends and others, develop new interests in new areas.
Don't give into it, fight it and it will get better and you can have a decent living.
Don't give into it, fight it and it will get better and you can have a decent living.
Don't lose hope, build up strength, take an interest in life.
Last reviewed June 2017.
Last updated August 2011
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